• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Upcoming events
  • Jan 19

    Stairclimb for clean air, Manitoba

    You and your teammates will be given a start time and during your 15 minutes, you and your team do you best to get in as many laps on the stairs as you can.

    Read more
    Jan 24

    Better Breathing Conference, Toronto

    January 24-26, 2019. Take advantage of this unique opportunity to participate in a range of innovative sessions headed by leading medical professionals

    Read more
    Feb 24

    Vancouver Annual Climb the Wall

    Open to all abilities, the 491 ft Sheraton Wall Centre is an iconic landmark in downtown Vancouver that you can only climb with the BC Lung Association

    Read more
  • Feb 24

    Ride for Rare

    A small group of passionate people can do amazing things if they put their hearts and minds together! Ride for Rare is a grassroots initiative to mobilize health centers, namely spin studios across the country to participate in a Charity Spin Ride.

    Read more
    Mar 28

    Breathe Bash

    The Lung Association is thrilled to announce that the Sickboy crew will be back to emcee Breathe! Bash 2019.

    Read more
    May 24

    Inspired Breathing Conference

    May 24th and 25th, BREATHE Lung Association - Saskatchewan. Bringing together patient voices, family physicians, respiratory specialists, and other health care professionals together

    Read more

Inspired Breathing Conference RSVP

Stairclimb for clean air, Manitoba RSVP

Ride for Rare RSVP

Breathe Bash RSVP

Better Breathing Conference, Toronto RSVP

Vancouver Annual Climb the Wall RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.