Support another alpha
The goal of the Alpha-1 Canada Peer-to-Peer Program is to provide patients and their families support and help them understand the complexities of this rare genetic disease. Meeting another Alpha, if only for a one-time phone call or developing a long-term friendship, can certainly help to ease feelings of isolation when living with a rare disease.
Peers are carefully chosen by Alpha-1 Canada and they can help other patients and their families address the challenges related to the disease.
Alpha-1 Canada’s Peer-to-Peer Program, links you with another Alpha who shares similar health and life circumstances. Through these trusted relationships, fellow Alphas and their family members can provide support in many ways:
- They listen to concerns
- They share personal experiences
- They serve as a resource for developing coping strategies
- They provide guidance in negotiating healthcare systems
Sharing experiences can help other patients and families navigate their own path and know that they are part of a community that understands and supports them.
If you are interested in becoming a Peer-to-Peer volunteer, please contact us today!