• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Enroll to Alpha-1 Canada

By enrolling with Alpha-1 Canada, you can help us identify the number of Canadians diagnosed with Alpha-1, which helps us advocate on your behalf when we are working with provincial and territorial public drug programs to help you get access to therapies.

Register with Alpha-1 Registry

The Alpha-1 Canadian Registry is a confidential database where Canadian researchers store information shared with them by patients. By registering with the Alpha-1 Canadian Registry you will be kept up to date on research advances, treatment options and opportunities to participate in clinical trials.

Upcoming events
  • Nov 09
    Nov 14

Steeltown Climb, Hamilton, ON RSVP

National Respiratory Conference RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.