• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Upcoming events
  • Nov 15

    Lace Up for Kids 2018, Vancouver

    Lace Up for Kids helps the Rare Disease Foundation fund microgrants in finding solutions across rare diseases around the country since 2009

    Read more
    Nov 16

    Toronto LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more
    Nov 17

    Montreal LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more
  • Nov 22

    Ottawa LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more
    Jan 24

    Better Breathing Conference, Toronto

    January 24-26, 2019. Take advantage of this unique opportunity to participate in a range of innovative sessions headed by leading medical professionals

    Read more
    Feb 24

    Vancouver Annual Climb the Wall

    Open to all abilities, the 491 ft Sheraton Wall Centre is an iconic landmark in downtown Vancouver that you can only climb with the BC Lung Association

    Read more

Better Breathing Conference, Toronto RSVP

Lace Up for Kids 2018, Vancouver RSVP

Vancouver Annual Climb the Wall RSVP

Ottawa LIVERight Gala RSVP

Montreal LIVERight Gala RSVP

Toronto LIVERight Gala RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.