• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Upcoming events
  • Mar 28

    Breathe Bash

    The Lung Association is thrilled to announce that the Sickboy crew will be back to emcee Breathe! Bash 2019.

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    May 10

    Rare Disease Gala, Toronto ON

    May 10th, join us at the Sheraton Centre Toronto Hotel for our 7th annual rare disease gala.

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    May 24

    Inspired Breathing Conference

    May 24th and 25th, BREATHE Lung Association - Saskatchewan. Bringing together patient voices, family physicians, respiratory specialists, and other health care professionals together

    Read more
  • Jun 01

    Stroll for Liver

    London, Toronto & Ottawa (June 1st to 15th)
    See website link for specific dates in your city. This fabulous fundraising event is a family friendly, community-based walk/run event dedicated to raising funds for liver research and education.

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Stroll for Liver RSVP

Rare Disease Gala, Toronto ON RSVP

Inspired Breathing Conference RSVP

Breathe Bash RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.