• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Upcoming events
  • Sep 24

    6th Patient Experience Forum

    Our healthcare system is undergoing a transformative shift from ‘patient-centred care’ to ‘patient partnership’. Going beyond PFACs, healthcare organizations are now partnering with patients for meaningful engagement.

    Read more
    Oct 26

    Science for Rare Warriors

    Learn how to navigate the complex world of medical science. Early bird tickets are available until July 15 on a first-come, first-serve basis, so register today!

    Read more
    Nov 03

    Vancouver Save the Date

    Saturday, November 3, 2018
    Pacific Gateway Hotel at Vancouver Airport
    DETAILS COMING SOON

    Read more
  • Nov 16

    Toronto LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more
    Nov 17

    Montreal LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more
    Nov 22

    Ottawa LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more

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6th Patient Experience Forum RSVP

Science for Rare Warriors RSVP

Ottawa LIVERight Gala RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.