• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Upcoming events
  • Jan 31

    Patient-Centred Pharmacare

    A Consultation on Patented Medicine Prices Review Board (PMPRB) & Biologic Medicines, Toronto, ON

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    Feb 03

    Steeltown Climb

    Participants raise funds to support the mission of The Lung Association while training to climb the stairs of a skyscraper.

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    Feb 13

    Victoria Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
  • Feb 15

    Calgary Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
    Feb 21

    Vancouver Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
    Feb 28

    Toronto Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
  • Feb 28

    Rare Disease Day in Canada

    Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. February 28, 2018 will be the eleventh international Rare Disease Day coordinated by EURORDIS.

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    Mar 13

    Victoria Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
    Mar 15

    Calgary Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
  • Mar 22

    Toronto Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
    Mar 27

    Healthy Canada Conference 2018

    Join us to discuss how Canada can become a leader in implementing a personalized approach to health and wellness.

    Read more
    Apr 10

    Victoria Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
  • Apr 12

    11th Annual CRC

    Come and visit the Alpha-1 Canada exhibit at the Canadian Thoracic Society’s annual CRC Conference, in Vancouver, BC.

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    Apr 18

    Vancouver Parent Network Groups

    A group of local forums for cross-disease information sharing and social support. The group provides a means of organizing families for mutual support, mentoring and knowledge sharing regardless of their diagnosis.

    Read more
    May 10

    Rare Diseases 360°

    Rare Diseases 360° will address a comprehensive range of topic areas covered at the conference and the viewpoint of rare disease patients as equal experts, representing all rare diseases, across borders.

    Read more
  • Jun 29

    27th Annual National Conference

    The largest gathering of Alphas and families in the world! The conference takes place in San Francisco, CA and provides two days of educational sessions, networking opportunities, and fun activities.

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    Nov 16

    Toronto LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

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    Nov 17

    Montreal LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more
  • Nov 22

    Ottawa LIVERight Gala

    A fundraiser event that offers guests a night of top notch entertainment and gourmet food in 5 cities across the country

    Read more

Rare Diseases 360° RSVP

Rare Disease Day in Canada RSVP

Healthy Canada Conference 2018 RSVP

11th Annual CRC RSVP

27th Annual National Conference RSVP

Vancouver Parent Network Groups RSVP

Victoria Parent Network Groups RSVP

Calgary Parent Network Groups RSVP

Victoria Parent Network Groups RSVP

Toronto Parent Network Groups RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.