• Read
    Kelly’s Story

    Parenting is challenging at the best of times but juggling childcare
    while managing a rare disease brings additional heartache to Kelly,
    who would love to be able to run alongside her three active children.

  • Read
    Jolene’s Story

    Committed to a healthy lifestyle, Jolene uses physical fitness
    and positive thinking to manage her Alpha-1 and encourages
    others to do the same.

  • Read
    Cathy’s Story

    Even through the heartbreak of family loss and adversity,
    Cathy remains optimistic that there will be an increase in
    early diagnosis and treatment options for Canadian Alphas.

  • Read
    Syl’s Story

    Alpha-1 is a family affair. Syl illustrates that there is never just one Alpha in a family.
    Having this rare disease does not define Syl.
    He is an inspiring patriarch and an active Alpha!

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Upcoming events
  • Nov 04

    Alpha-1 Canada: Working For You

    We are kicking off Alpha-1 Awareness Month with an educational event for patients, families and healthcare providers in Toronto. Come and meet other Alpha-1 patients and leaders from healthcare community.

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    Nov 06

    CORD 2017 Fall Conference

    A Moon Shot for Rare Disorders: Leave No One Behind. Create a shared understanding of the patient journey and what “good” looks. Mobilize stakeholders around a common vision for Rare Disease Canada.

    Read more
    Nov 09

    Finding Purpose Conference

    The Canadian Network for Respiratory Care (CNRC) holds a national respiratory education conference every two years. Join us in Calgary, AB for this year’s conference: Finding Purpose.

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  • Nov 15

    Vancouver Parent 2 Parent

    The Rare Disease Network works together to see that more research goes into rare disease, and through their Parent 2 Parent Networks, they band together to share resources and navigate the world of rare disease care.

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    Nov 16

    World COPD Day – Montréal

    Join us for an educational evening hosted by Alpha-1 Canada to commemorate World COPD Day. This event is for patients and the healthcare community to learn more about Alpha-1 Antitrypsin Deficiency.

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    Dec 31

    Association General Meeting 2017

    CTA is comprised of transplant recipients, athletes & volunteers dedicated to promoting organ donation through public advocacy & events including the Canadian Transplant & World Transplant Games.

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  • Jan 25

    Lung Association’s Breathe! Gala

    An evening to enjoy socializing with a network of leaders in business, government and policy, while supporting those affected by lung disease. Click the "Visit Website" button to learn more.

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Association General Meeting 2017 RSVP

Lung Association’s Breathe! Gala RSVP

CORD 2017 Fall Conference RSVP

Finding Purpose Conference RSVP

Vancouver Parent 2 Parent RSVP

Alpha-1 Canada: Working For You RSVP

World COPD Day – Montréal RSVP

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DISCLAIMER: This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.