Programs and Services

Alpha-1 Canada offers a number of programs and services for patients, their families and caregivers and the medical community. We are always looking for new ways to help and are open to your suggestions. Currently our programs and services are:

    • Toll Free Support 1-888-669-4583
    • Support programs
    • Patient Education Days
    • Educational webcasts
    • Facilitation of one-on-one peer-to-peer support
    • Bilingual print materials for patients, caregivers and family members
    • Bilingual print materials for physicians and allied healthcare professionals
    • Promotion of wellness and self-management in healthcare programs and services including smoking cessation, nutrition, exercise and other lifestyle changes
    • Promotion of and information on testing, early detection and treatment of Alpha-1 Antitrypsin Deficiency
    • Advocacy for equitable and affordable access through provincial government reimbursement for Alpha-1 Antitrypsin augmentation therapy
    • Advocacy for federal government policies addressing orphan drugs, rare diseases, access to treatment, quality healthcare and genetic non-discrimination
    • Provide a range of collaborative services to healthcare professionals including consultative participation in policy forums and referrals for patients to researchers for clinical trial recruitment
    • Investigate, create and implement on-going methods for organizational growth, data collection and healthcare management
DISCLAIMER:This website is designed to support, not replace, the relationship that exists between you and your physician. It is not the intention of this website to provide specific medical advice but rather to provide the Canadian Alpha-1 Community with information to better understand their health and their diagnosed disorder. Specific medical advice will not be provided and Alpha-1 Canada urges you to consult with a qualified physician for diagnosis and for answers to your personal questions.
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